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Author Topic: Steroid Responsive Meningitis ?  (Read 23556 times)

Jo CIMDA

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Re: Steroid Responsive Meningitis ?
« Reply #165 on: March 13, 2018, 01:35:34 PM »


Thank you so much Elaine and Catherine.  I am so sorry you are going through this yet again Elaine.

18 years ago, when my Bonnie died, as a result of bad treatment by a 'specialist' vet, I felt so alone.  At that time, the vets in general practice had very little experience of autoimmune disease in the dog, if any at all, and even the specialists were still struggling with knowledge, experience and documented evidence, and my poor Bonnie was a victim of this inadequacy.  Despite me telling the specialist that the dose of preds was too high, she told me if I lowered the dose I would kill her, so I listened to her, respecting her expert status, and Bonnie died of a blood clot as a result of the preds being too high.  After this time I was told that because of Bonnie it was accepted that larger dogs do not tolerate high doses of steroids, and from that time on the recommended starting dose of preds was established at 1mg/kg/12hrs.  Bonnie was my first dog and my soul mate. The grief of losing her was immense.

Breed clubs do not like anyone highlighting a genetic predisposition to a particular disease and when I brought this up at an AGM, I was told by the Chairman of the main club at the time, that I was making trouble. I replied by quoting a rule of the club that states something like this: If anyone knows anything that might be detrimental to the health of the breed then it is their duty to bring it to the attention of the club.  It didn't make me very popular, as you can imagine, and this is why CIMDA was formed. I was determined to broaden the awareness of AI disease, and I went it alone.  The rest is history, as they say.   I must point out that since then, my relationship with all the breed clubs, in my breed, has been a very good one and we work together on many issues and the genetic predisposition to AI disease is now accepted.

I am so glad this forum and website is able to provide information, by way of people's experiences, and also to give support to anyone who is unfortunate enough to have a dog with an AI disease, and as bad as that is, they know are not alone.  It wouldn't work without all of you sharing your experiences, so my thanks go to all of you.

Jo

 




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Elaineb1624

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Re: Steroid Responsive Meningitis ?
« Reply #166 on: March 13, 2018, 05:21:05 PM »

Thank you for your response Jo.
This forum is unaware of the massive support you have given me privately in the last month when my third dog showed signs of SRMA plus panniculitis. The latter being something i had never heard of.

So CIMDA goes above and beyond this group.

For Information purposes i will brief my journey with Tara. Approx one month ago she presented with  what i will describe as nodules come up under her skin and they increased in number rapidly. A Fine needle asperation was taken  which proved inconclusive but suggested what Jo had already mentioned. Sterile nodular panniculitis. Inflammation of fatty tissue beneath the skin. It can be immune mediated. At this point we chose  a kinder route for treatment than steroids, she wasn unwell, however one week in Tara was rushed to the vet with a stiff neck. I couldnt quite comprehend my beautiful whippet was indeed showing signs of SRMA, her litter sister has had the same as all my other posts on this thread  tell her journey.  So there we are back here again and thank goodness for you wonderful people. Tara is on high doses of preds right now and coping well.

Although i have been here too many times already you have to take each day as it comes. Each dog being different. I know i couldnt do it without this fantastic group. Im only sorry so many dogs suffer. I hope you take some comfort in knowing through your terrible experience with Bonnie, Jo, you have saved so many many dogs over the years and For that we are all truly grateful.
Thank you for telling your story. You are one brave lady.


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Elaineb1624

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Re: Steroid Responsive Meningitis ?
« Reply #167 on: March 13, 2018, 05:24:10 PM »

Thanks to Catherine for your response too! How rude of me to not mention you. Apologies.
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Catherine

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Re: Steroid Responsive Meningitis ?
« Reply #168 on: March 13, 2018, 07:46:03 PM »

That's okay Elaine, I quite understand as you have enough to think about at the moment with Tara.
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Elaineb1624

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Re: Steroid Responsive Meningitis ?
« Reply #169 on: March 17, 2018, 06:37:27 AM »

Hi
   I have concerns re Tara she has been being treated for SRMA for the last two weeks, i thought she looked thinner and its possible she has dropped almost 2 kg in this time. I am sure she has weight loss but without  weighing at the vets its only a rough guide on my home scales.
Is this something that can happen on immuno suppressant doses. She has no other signs of anything and eats well. I am worried. I will speak to my vet.
I am aware of poosible drug induced cushings but would this happen so soon in?
Thanks.
Elaine.
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